Don’t Dream It’s Over (My Postpartum Progress Update)

 

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The decision could have gone either way and frankly I was prepared for the worst:

To be ignored…

To be shunned…

To have my deepest concerns minimized…

Some of you who read My Perinatal Mood and Anxiety Disorder Gets No Respect Part One and Part Two know that I contacted Postpartum Progress to ask if they’d include information about postpartum bipolar disorder (now termed “bipolar disorder with peripartum onset” in the DSM-5) on their ginormously popular website.

Postpartum Progress is one of the largest, most influential U.S. nonprofits that assists women living with postpartum mood and anxiety disorders (PMAD’s) aside from Postpartum Support International. Both PP and PSI are amazing organizations which provide information, encouragement and networking for women living with postpartum mood disorders.

In 2014 Postpartum Progress published my article edited by Cristi Comes about postpartum bipolar disorder. After this article went live, postpartum bipolar disorder was included in a list of PMAD’s on Postpartum Progress’ fundraiser Climb Out of the Darkness page.  

However, postpartum bipolar disorder wasn’t mentioned on the most important website pages defining each PMAD. Some of these page titles include “PMAD’s We Think You Need to Know About”and “FAQ’s” – the very pages that anxious, possibly mentally ill moms scan when they’re in crisis. This information could help mothers  who might have this lesser-known disorder but not be aware of its symptoms.

I had a big problem with this omission and I couldn’t let it go – and believe me, I wanted to forget about it. The way I saw it was this: if you’re going to run a nonprofit for mothers with perinatal mood and anxiety disorders, then you need to include every single PMAD in your information pages. It’s not enough to list PPBD in one paragraph and publish my article about it (which is buried among the hundreds of other articles) yet otherwise ignore its existence.

A couple days ago I decided to send a second email to Postpartum Progress as I had sent it almost a month ago but hadn’t heard back. Today I got great news in my email’s in-box from Postpartum Progress founder Katherine Stone. She apologized for not getting back to me sooner, explained they have an extremely small staff (which I knew) and wrote that if I write up something about bipolar disorder, peripartum onset, she’ll be glad to include it on the site. She also mentioned they’re redoing their “Warrior Mom” badges this fall (I explain this in my “Respect” posts) and she promises me there will be a badge for bipolar disorder, peripartum onset! 

(I like the sound of postpartum bipolar disorder better but I need to go with the DSM-5 terminology for Postpartum Progress. )

I was so happy to get Katherine’s email. I knew she was busy as their big Warrior Moms conference had just ended a few days before I sent my first email, and I wrote her that I understood that she or another staffer would need time to get back to me.

BUT…

I had to go with my gut and be a pain in the ass, hence email #2. 

Frankly, I might not have been so caught up with nagging Postpartum Progress to mention PPBD if I wasn’t constantly reminded that my perinatal mood and anxiety disorder doesn’t exist by almost everyone. It gets old real fast! I was pleased and stunned for a minute when I read BP Magazine editor Elizabeth Forbes’ article “Your Particular Slice of Bipolar” in the Summer 2015 issue – she included a “bipolar disorder, peripartum onset” definition. Oh joy!

Sure, I’m writing my book to educate people about postpartum bipolar, but we all know that almost everyone is writing a book these days, including my hound Lucy.

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As much as I’ll promote Birth of a New Brain (and at that point I’m probably going to lose my Seroquel belly from all the effort) it’s likely to get lost in the shuffle of the tribble-like profusion of books published every day. 

Those who can make the biggest impact to educate others about PPBD are established perinatal mental health nonprofits, doctors, hospitals etc. through the internet and other channels. After my book is published and promoted, I’d like to start a nonprofit for mothers with postpartum bipolar disorder.  I’ve worked for no less than three nonprofits and I know a thing or two about the good, the bad and the ugly. I’d really love to do this and we shall see!

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Moving on…(if you want a direct, concise “brevity is the soul of wit”-style post, this blog is not for you! 😉 I’ve noticed some women, including me, rarely get the assistance they deserve unless they get angry at the customer service representative or doctors or what have you. It’s bizarre.

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I’ve fired off emails that are sweet-as-pie and never get a response, but when I’ve sent emails with a subject title such as “I’m extremely disappointed”, “An unhappy fan”, or “I’m furious!” I got a speedy reply! It shouldn’t be like that, but it often is. So I’m glad I didn’t have to get angry (not “bipolar angry”, but simply angry) in this particular situation. I don’t like playing that game one bit. 

I’ve saved the end of this post for my Crowded House Don’t Dream It’s Over speech. If there’s something important to you that you want to do (but you keep putting it off) PLEASE don’t give up. Maybe you’ve attempted this difficult task a few times to no avail. I’m giving you permission this very moment to go easy on yourself about the whole matter, but give whatever it is one more chance. I want you to have your Postpartum Progress moment! Take to heart the words of the great Neil Finn:

“Hey now, hey now
Don’t dream it’s over
Hey now, hey now
When the world comes in
They come, they come
To build a wall between us
We know they won’t win”

 

Thanks for reading, my friends – have a great ‘n groovy weekend!

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Artwork by blogger extraordinaire Blahpolar Diaries – I actually thought this was a coffee mug at first! Can I blame the meds?

Dyane’s memoir Birth of a New Brain – Healing from Postpartum Bipolar Disorder with a foreword by Dr. Walker Karraa (Transformed by Postpartum Depression: Women’s Stories of Trauma and Growth) will be, fingers and eyes crossed, published by Post Hill Press in Fall, 2016

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8 thoughts on “Don’t Dream It’s Over (My Postpartum Progress Update)

  1. Youppi! So happy for you… and for me 🙂 I’ll get to add the right badge on my blog page! I don’t know if I told you but the exact diagnosis that my psychiatrist gave me when I was hospitalized was “Bipolar disorder of postpartum onset with psychotic features”. Since I could not find a badge for PP bipolar disorder, I have been using the PPP badge because I did experience some symptoms of a psychotic episode (while being manic). But I did not feel that it was really the right badge for me. Thanks for your determination. It was well worth it!

    1. You are so welcome, Geneviève!! Merci! I’ll never forget how comforting it was when you and I shared our experiences regarding Postpartum Progress’ website and its lack of info. about postpartum bipolar disorder – and I’m so glad we connected there too! I don’t mean to sound completely snarky about Postpartum Progress because they did bring you into my life!

      All along I’ve appreciated your encouragement and true understanding of the challenges we live with. I don’t recall if you told me your exact diagnosis but it totally makes sense that you would chose the PPP badge – I’d do the same thing.

      If I ever start that nonprofit I’m going to ask you to be an honorary Board Member! 😉

      Have a wonderful weekend,
      Dyane

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